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Ellie Simmonds: “Strictly gave me confidenceâ€

Five-time Paralympic gold medal winner, Ellie Simmonds, talks Strictly.

The Access All team were shocked when Ellie Simmonds left this year’s season of Strictly Come Dancing – the first person with dwarfism to compete on the show.

But the dancing competition’s loss is this episode’s gain, as Ellie chats all things representation, ballroom, skydiving and her plans for the future.

Why do we only ever hear about disabled dating, and never about long-term relationships? Presenters Nikki Fox and Emma Tracey talk about their experiences, plus provide some tips and advice.

Billionaire Elon Musk might have bought Twitter, but he also reportedly sacked half of its staff including the entire accessibility team. So what does this mean for disabled people? ±«Óãtv Click’s Paul Carter and accessibility consultant Leonie Watson help us make sense of a wild week in social media.

Producers: Keiligh Baker, Amy Elizabeth and Emma Tracey
Recording / mixing: Dave O'Neill
Series editor: Beth Rose
Senior News Editor: Jonathan Aspinwall

Release date:

Available now

37 minutes

Transcript

OICE- Waving hand. Party face with a party blower. Hat and confetti. Face rolling on the floor laughing. I love you, heart with stars. 

EMMA- I love you, heart with stars, that’s what you sent to me. 

NIKKI- Ah, yeah, we did that earlier, didn’t we?

EMMA- Yeah, an emoji.

NIKKI- I have no idea what happens when you send emojis to people who are blind, like Emma. She was like, send me a heart and you can hear it. And it went, hear with stars. 

EMMA- But I did see an emoji last night that was grinning face with one small and one large eye. That just did not conjure anything up for me. 

NIKKI- What emoji’s that?

EMMA- Well, apparently it missed out the bit where there was a big tongue lolling outside one side of the mouth, which apparently…

NIKKI- Drunk?

EMMA- I think it’s not a very nice way of saying that something’s a bit mad. 

NIKKI- Oh okay.

EMMA- A bit crazy. I think. But if you don’t know what it is I’m not going to know what it is. 

NIKKI- No, I’ve no idea. I’m useless at emojis. 

EMMA- I am a smiling lump of pooh at emojis. 

NIKKI- Pooh, yeah. 

EMMA- And another one I really don’t like is distressed face vomiting. 

NIKKI- No, that’s awful. When would you use that?

EMMA- That must sound worse than it looks. It must. 

NIKKI- I don’t think I’ve ever distress face vomited.

EMMA- Oh god. Beth, the producer, is now just emoji bombarding me. Hang on. 

VOICE- Message: woman shrugging. 

EMMA- Woman shrugging. 

NIKKI- I didn’t even think emojis had genders. 

VOICE- Message: cat characters.

EMMA- Are you ready for this one?

VOICE- Message: screaming in fear cat face.

EMMA- Did you get that one? 

NIKKI- Fear in what face?

EMMA- Screaming in fear cat face.

NIKKI- What’s a cat face?

EMMA- It’s a face of a cat I assume. I guess this one is screaming in fear. 

NIKKI- A cat that’s just been run over? 

EMMA- Or just about to be run over!

NIKKI- Yeah, cat in the headlights.

EMMA- Meow. 

MUSIC- Theme.

NIKKI- It’s Access All, our weekly disability and mental health podcast from the ±«Óãtv. I’m Nikki Fox and I’m in London. 

EMMA- And I’m Emma Tracey and I’m in Edinburgh. Now, Nikki is not going to be happy about this. In fact I think she’s going to be raging. But I got to speak to Ellie Simmonds. Sorry Nikki. [Strictly Come Dancing theme tune] We’ve been cheering on our favourite dancer, Ellie Simmonds, OBE, on Access All. So, when she and her dance partner, Nikita Kuzmin, went out on Sunday our WhatsApp group absolutely exploded with angry face and sad face emojis. I was very, very emotional all together, I have to say. It’s a cliché, but the five-time Paralympic gold medal winner captured the hearts of everyone who saw her perform. I am honoured and completely delighted to have Ellie Simmonds here for a chat with me. Hi Ellie, how are you?

ELLIE- Hello. Thank you ever so much for that introduction. That’s so lovely.

EMMA- Oh, you deserve every single bit of it. And it’s your birthday!

ELLIE- It is. I’m 28. I love birthdays, so yeah, it’s very exciting. 

EMMA- Do you? 

ELLIE- Yeah, I do, I do. 

EMMA- What are your plans?

ELLIE- Well, I’m off to America now. I’m off to Washington DC just to get a break away. After the confidence that I got from Strictly I’m like I can do anything, so I thought I’ll go to Washington for a bit because it’s always somewhere that I’ve always wanted to go. As a kid I loved the National Treasure with Nicholas Cage, and I always wanted to go and see the Declaration of Independence. So, I thought I’ll go there for a couple of days, and then I’m going to go and visit my friend in Colorado. 

EMMA- So, what have you been up to this week, first of all, since you finished with Strictly?

ELLIE- Just really trying to process everything. Like I was speaking to my other Strictly family who have departed from the show already, and we all say the same thing: it’s like a loss in a way. It’s a weird feeling. For me I was dancing for seven weeks, and that’s all I had planned, that’s all I was doing. I was literally living and sleeping and thinking about Strictly Come Dancing. And then all of a sudden that goes and it’s out of your control. It’s just afterthought, just trying to process it all. Like I’m not with Nikita anymore, I’m not dancing, it’s just trying to process it. And I’m just busy with other stuff now, which is nice because I love being busy, I love being proactive and doing lots of things. And I’ve got another documentary that I put on pause whilst I’m doing this. Just loads of other little bits. Just enjoying every bit. 

EMMA- Let’s get on to Strictly. What’s it been like? Just tell me, I want to know everything. 

ELLIE- It’s been absolutely incredible. I’ve had the time of my life. And I think for me, like you said, with the disability side Strictly is a huge, huge show, it’s a huge, huge programme, millions and millions of people on a Saturday night watch the show, and to have that opportunity to be part of that platform of representation for disability and the dwarfism community was a huge, huge honour. I’ve never actually been on a show that has been so accommodating and so amazing. Even like when I go to Claudia’s section or when I do It Takes Two they always have a stool there for me, they give me a bit extra time to walk down the stairs, they put things lower in my dressing room so that I could reach things. They just did it. And the whole team behind the screen are literally so welcoming, so accommodating, make me feel so ease. Nikita was amazing with me. And what he did to adapt the dancing, like he’s a 24 year old, he’s never danced with an individual with dwarfism before, and it just came so natural to him. 

EMMA- Is he the main choreographer? 

ELLIE- No, he’s the choreographer for just me and him. So, he’s the one that thinks of all the ideas for each week. 

EMMA- And how did you and he adapt the dances? 

ELLIE- So, at the start when we first started training he just started chatting to me and just got to understand what I could do, what I couldn’t do. And from thereon when we got really comfortable and really good friends with each other we would just chat about it, and he’d be like, ‘Can you do this? Can you do that?’ And then when he got to know me he just thought of all the ideas in his mind. So, it was the stride length, it was again with dwarfism and achondroplasia I’ve got bowing of the legs, so with the Cha-Cha-Cha and some of the leg movements you’ve got to go fully straight which I can’t do, so he was aware of that. Again, the height difference with the hold, the likes of the Paso Doble he was doing it on his knees. And he was just doing the dances so it worked and suited for me so on a Saturday night it was able for me to go out there and shine because of the ideas and the choreography and the things that he did. We would get a couple of hours off before we start back on Monday, and on those times where I would be resting, I would be sleeping, catching up, he would be working away and thinking of the dance for the week ahead. So, in a way these pro dancers they never stop. They’re literally amazing. They’re thinking of things, they’re dancing, they’re dancing with us, they’re teaching stuff, they’re doing stuff all the time. And him having that extra just bit of a challenge, which wasn’t a challenge for him; he absolutely loved it. 

EMMA- Do you think, I mean we know that Nikita is type 1 diabetic, we can see the monitor on his arm when he’s dancing, both of you having something additional to consider do you think that was actually a positive?

ELLIE- Definitely. We chat about it. But I think, like he said it the other day, and I say it, like we forget; we just see each other as I see him as Nikita and he sees me as Ellie. I’ve got dwarfism, he’s got diabetes, we’ve all got a story to tell. He’s exactly like me. His personality is exactly like me: he’s competitive, he’s driven, he’s determined. And I think that helps as well because we just go out there and we just do our thing. Like he loves dancing, I’ve fallen in love with dancing too, and we just go out there and we just dance our hearts out every day and every Saturday night.

EMMA- A little guy I know has just been diagnosed with type 1 diabetes, and they’ve been watching you and Nikita and he cried when you left because Nikita was such a great role model for him, so special. Really genuinely useful for people, and useful for people with dwarfism as well to see you. And we’ve heard of a number of families whose children it’s made such a big difference to them. 

ELLIE- Oh, that definitely touches the heart, and I’ll let Nikita know that. Because, again, he loves going out there and representing the diabetic community, and for me the same with the disability and dwarfism community. When you get those messages it means so, so much. We do it for those people. Yes, we do it for ourselves and I do it for myself, but we’re going out there on a Saturday night and we’re representing so many different people out there, not just showing them they can dance, but the education, the awareness that we aren’t all average height or a certain way. We are all different and we can do anything if we put our minds to it. 

EMMA- Do you think actually being a Paralympian helped with the training and the approach to it all? 

ELLIE- It did help, no definitely, because some of the skills that I learnt from my swimming days, not just physical but mental, with the nerves and the pressure, those skills that I did as a swimmer to cope with those I did it on a Saturday night. 

EMMA- So, what kinds of skills? What can I learn? 

ELLIE- So, when you get really, really nervous again your heart rate raises. For me I just think about my breathing, I focus on something that’s stable. So, when I would walk on the dancefloor I would either look at Nikita or I would look at the glitter ball up on the roof; just two things to forget about all the people that are watching, to forget about the TV, to forget about the judges and the spectators. Those little things. And just realising that nerves are okay, it shows that you care, it shows that you want to go out there and do well, it’s passion. So, just flicking it from the anxiety side and thinking it’s positive, your body’s getting ready to go out there and show the world what you’re made of. 

EMMA- Do you get to keep your costumes? Does everyone get to keep them? I’m very keen that you get to keep those dresses basically. 

ELLIE- Yes, I’ve taken two actually, my two favourite ones. I’ve just kept them for myself as a memory. It was the gold dress on my first dance, and my red dress on my last dance. And it was so nice of them. I probably won’t wear them when I’m going out to the shops or anything, but they’re definitely ones that I’ll just keep as fond memories. 

EMMA- In terms of hair and make-up are there any tips that you’re going to take forward now into your life? Because it feels like such a privilege to be able to have that done for seven weeks in a row. 

ELLIE- Oh, I’m going to miss that. I’m literally going to miss the fake tan, the hair, the make-up, the costumes, all of it because it’s so amazing. And every Saturday night we would go and sit in there and get transformed into looking so different. I’ve learnt some skills, but also I’ve made friends with the people that made us, the hair, the make-up department. 

EMMA- Very good friends to have. 

ELLIE- Yes, definitely, definitely. I think that’s the thing with Strictly, it’s not just about the dancing but there’s so much that goes on behind the scenes, there’s so much friendship, there’s so much family, there’s so much love, there’s so much happiness that happens behind closed scenes. It takes over your life but in such a positive way. So, that’s why I think when you leave or when it’s finished a piece of your heart’s gone because it’s seven weeks of intense fun. 

EMMA- I know, you said it was like a breakup. Are you able to tell me who you think is going to win? Who do you reckon is going to win, Ellie?

ELLIE- I can’t say this, I really, really can’t say this because I love them all and they all deserve it so much. 

EMMA- I’m going to support Hamza from here on in, not because he’s one of the favourites, though that’s handy, but because I’ve got small kids and we watch him on the telly.

ELLIE- Yeah, they’re literally all so lovely. I love them all. 

EMMA- What are you going to do next? You’re going to America, you’ve got the documentary going on. 

ELLIE- Yeah.

EMMA- Is there anything else we need to be aware of? 

ELLIE- I’d love to travel more. I’d love to swim with humpbacks. 

EMMA- You kind of missed all that, didn’t you? Because you’d been swimming since you were 13.

ELLIE- Definitely. And I think, like you said, with the swimming I had my life planned out for so many years, I knew where I’d got to be every single day. Whereas now it’s like that chapter of my life’s finished and it’s like a new one. And it’s just like trying to figure out what I want to do next. 

EMMA- Do you ever get into a swimming pool? 

ELLIE- I did before Strictly, and I will go back to it definitely, because again swimming is my sport, it’s a sport that I love to do. I only normally swim for about 20 minutes, half an hour, but again it helps more mentally as well. 

EMMA- It must be a joy to just get in for half an hour and then get out and go, yeah, I don’t need to prove anything. 

ELLIE- Oh yeah, it is so, so nice. 

EMMA- Ellie, it’s been an absolute pleasure. I have loved chatting to you. Thank you so, so much. 

ELLIE- Thank you very much for having me on and chatting away. It’s been wonderful. 

MUSIC- Access All. 

NIKKI- Ems, I feel like we’ve talked about dating quite a bit on the podcast, haven’t we? But we haven’t spoken so much about relationships. And as you know, and as regular listeners might know, I am obviously very much in love with my fella, Dave, who is a gardener. I have not been in love like this and I’ve not been in a serious relationship like this. 

EMMA- Why do you always say that he’s a gardener? 

NIKKI- I love that he’s a gardener. I’m really proud of it. It’s like the way I always talk about my dad and I say he’s a builder. I just like those kinds of jobs. I’ve always aspired to be with someone that has a job that actually means something. I never want anyone in TV. 

EMMA- Proper, useful, practical, sensible job.

NIKKI- Yeah. And he makes things look beautiful. It’s still kind of fairly new territory for me really, being in a serious relationship. I mean, I know you’ve been in it for a while, haven’t you, because you’re actually married. 

EMMA- Oh yeah, I’m married nine years now, and I met my husband when I was 23 so I was quite young. When I was a teenager I didn’t have boyfriends. I kissed boys, but I didn’t have boyfriends up until sort of university time. I did feel like that was because I couldn’t see, and I felt like why would someone go out with me when they can go out with someone who can see to do their make-up and their hair and who can run around and stuff. That was how I felt at the time for sure. 

NIKKI- Really?

EMMA- But then you did have boyfriends then at that stage of your life? 

NIKKI- Yeah, I did. I dated like a ninja. No, I had a few, they were never very serious though. Back then I think I was quite confident in that department. That was when I used to walk – I’ve told you this before – but I walked very badly, so I was very obviously disabled. I probably looked more disabled back then than I do in a scooter. 

EMMA- You were differently mobile. 

NIKKI- I was differently mobile. I like that. It’s one of those things sometimes I’d be at a bar and I’d be standing up and then a guy would come up to me and start flirting with me and ask me out, and I’d have to like say, ‘Um yeah, it’s really awkward, but when I walk off you’re going to notice that I’m disabled’. And I used to say it, and often it didn’t used to bother anyone and it was fine. I was all right, and then about 25 I started using a scooter. But that was also around the same time that I started getting a serious proper job as well. So, I just thought get my head down and work. And then I just didn’t think about boys at all. And I don’t know whether it was the fact that I was coming to terms with the fact that I wasn’t walking quite as much, that I was in a scooter. I probably saw myself slightly differently than I did when I was walking. Probably all of that was going on; I didn’t really give it much thought. 

EMMA- Disabled people are actually more likely, aren’t they, to be later on in their lives before a long-term relationship comes along. 

NIKKI- That’s it, date later on in life. When I met Dave I was 40, and I knew pretty much that I loved him. He knows that. And I know that he loved me too, but obviously he took a little bit longer because I’m just an open book and I just look at him and I’m like I love you, not playing it cool in the slightest. But I’ve had to learn to not be perfect all the time. And what I mean by that is I’m very independent, I have my PAs, I’ve got my job, I want people to see the happy, fun, bubbly Nikki all the time. Which is just ridiculous, you can’t live that way. And when you have a boyfriend obviously you have to let go. I’ve had to allow him to do some things for me, like personal things that I do with my PAs, which I never dreamed of doing that with another fella. 

The big thing for me when I started dating Dave was I was thinking okay, so when I go to the bathroom I will need a bit of a hand, that is just to sit down and to stand up, okay. But I need someone; I can’t do it without someone. That ship sailed back in my 20s. And I was like how do I do that, because if I’m going to spend any longer than eight hours with him, I’m going to have to ask him. So, when we first started dating I planned it so that one of my PAs would meet me wherever we were and I would sneak off for 15 minutes and come back. Then I was like okay, this isn’t going to be viable long term, right. He’s so intuitive my fella, and so empathetic and wonderful, I remember this distinctly: we were like a good couple of months in, we were getting to the point where we were definitely going to be staying over with each other, and as we were saying goodbye he came to my window and he goes, ‘Well, I guess for you now you’ve just got to put up with me giving you a hand going to the bathroom, haven’t you?’ And I was like ah, and I cried a bit. It’s really sad, isn’t it?

EMMA- So, he named it. he was like, the only way I’m going to get longer with Nikki in one go is to name this and to say, I know you’re doing this, I know you need help with this.

NIKKI- Yeah. And he had to be the first person to say it because I wasn’t going to be. I was trying but it just never came out of my mouth. I’d be like say goodnight at 10 o’clock in the evening, bye, and off I’d go home. 

EMMA- Isn’t it funny how you do 40 years of being disabled and there are still things that you struggle with? When we began to go out, I think really before we had the children, I didn’t need any external support. But when we had the kids I realised that I needed some external support, and there were long conversations with him. And he probably was more comfortable with it before I was. He’s visually impaired too, but I’m totally blind, and he has some sight. And that was an enormous change for us. So, we went from having nobody external in the house really, to having PAs in the house. It’s a really interesting one in how that works when there are PAs because we’re much more able to do things and get the kids out and get stuff to the tip and do all those sorts of exciting things. But there’s another person involved. Something I navigate still is when we go on holiday to somewhere that’s outside of my environment. Because my house is my castle, I know where everything is and I’ve got, well I should have stuff labelled, but I’m not organised enough. And then when we go to an unfamiliar place there’s a lot of him doing things because it’s quicker, because I don’t know where everything is to do them. And that’s something I still navigate in my head. I mean, he does not care at all; but it’s still something that I feel things about when I’m less physically able to run about and do things when I’m in an unfamiliar place. 

NIKKI- So, you’ve been with Robin for 17 years, haven’t you? 

EMMA- Roughly. 

NIKKI- It’s all new to me. Give me some tips and advice, Emma. 

EMMA- I think talk honestly about what you need, and what they need, and what’s needed in the family, and see who can do it and when we need the PAs and when we don’t, and when we need some help or we need to not do something. So, it’s a really honest conversation about cutting your cloth and figuring out how to make the next move. So, very much a lot of honesty, a lot of chat, a lot of talking through things. And then you have to do it less and less because you sort of know and you get into your routines and stuff. 

NIKKI- As I get older as well I do want to be able to try and do as many things and keep doing as many things as possible. And even now with the design of the house, before we do the bathroom I want to work out, okay if we design it like this that will force me to still have to walk a few steps to get to here, and to walk a few steps to get to there. And when I say walk it’s horrendous, and my neck goes back and I have to do it with somebody else, but it still keeps me fit and strong, so I’m still pushing myself. I am thinking about all of these things to one, keep strong, and two, keep as independent as possible. Because it does sometimes get tiring. It will obviously get tiring for the other person, but for me it gets tiring asking people all the time. 

EMMA- Yes. 

NIKKI- And I get sick of the sound of my own voice. And I know if I wasn’t disabled I’d be a real doer. 

EMMA- Yeah, I think I would be a runner. 

NIKKI- Yeah, me too. 

EMMA- I would run around a lot. 

NIKKI- Yeah, 100%.

EMMA- But think of a long-term relationship in some ways as having the same PA for a long time. You don’t have to say lots of things now. But also their expectations of you are as high as they can be too, because they know everything that you can do, and they can say, ‘No you’re perfectly able to do that, I’ve got this to do so I’ll see you later’. 

NIKKI- That is in a way a bit of a controversial thing to say because a lot of people do actually assume, don’t they, that if you’re with somebody, I mean Dave’s not disabled, so I wonder if people assume that I’ve just hooked up with him so that he could be my carer. I mean, someone I know did say to me, I think they said something about him being a very good man, because obviously he will have caring responsibilities as well. At which point I just sort of stuttered, no please no, no, no. 

EMMA- Oh my goodness. And the thing about the partner PA, the only time that happened to me was in an airport when someone called my husband my dad. And I mean he is nine years older than me, but also he has albinism, which means that he has white hair, so someone obviously just saw the back of him or whatever, or just assumed, or whatever. But he has been called my dad for sure. 

NIKKI- Well, I’ve seen your hubby and he doesn’t look like your dad, Em. 

EMMA- Thank you. 

NIKKI- You know what, when you mentioned before about being blind, in my head so you know what I thought straightaway? I’m really sad that you didn’t see how amazing you looked on your wedding day. 

EMMA- Oh, that’s a bit patronising! [Laughter]

NIKKI- I know, but I don’t care! You looked so stunning, Ems. 

EMMA- I know. 

NIKKI- How do you know? 

EMMA- Because I… You remember we were taking about a TV show off air?

NIKKI- Yeah. 

EMMA- And I said, ‘Is that girl beautiful? Because she sounds beautiful’? 

NIKKI- Yeah. 

EMMA- And I think a lot of it is around, I can imagine she had lovely clothes and she was really confident. And that day I felt like a million dollars because I had the big dress, which I actually regret because it was really, really heavy, I was getting married, I was so happy. And I had everything arranged, and I had my make-up done, I’d had my hair done. I’d put the work in. You’re not the first person to say it, ‘I wish you knew how you looked’. I mean, no one’s actually said, I wish you knew how awful you looked in any moment, which is interesting. 

NIKKI- Well, there you go, you patronising friend on the podcast has just said. [Laughter]

MUSIC- Access All with Nikki Fox.

EMMA- It’s been a wild few weeks in the world of social media. Billionaire Tesla owner, Elon Musk, bought Twitter and promptly sacked half the staff. According to one engineering manager who was tweeting about it, his entire accessibility team for the company was fired too. Twitter is a lifeline for many disabled people who use it to connect with people and communities all over the world. Listeners have been in touch to say that they are worried about these changes, and some are thinking of leaving Twitter all together. And that’s because of lack of access, and also in a protest against access changes. I’m joined by the ±«Óãtv’s tech extraordinaire TV presenter Paul Carter from ±«Óãtv Click and ±«Óãtv World’s TechXplore, and Léonie Watson, a prolific tweeter and director of TetraLogical, an accessibility consultancy company. Hello. Hi Paul, hi Léonie, thanks for joining me. It’s been a bit of a week, hasn’t it, Paul? What’s been happening in terms of Twitter and accessibility? 

PAUL- Yeah, as you said, it’s sort of seen the culmination of the saga that has been Elon Musk buying Twitter for the pocket change, I guess we could call it, of $44 billion. One of the big things particularly that’s affecting us as disabled people is the removal of seemingly the entire accessibility team. That was part of a wider plan of job cuts that he undertook when he took over the company. We don’t have an exact number, but it’s expected to be around 50% of the workforce. It’s an interesting time, obviously a worrying time and a traumatic time for anyone working for Twitter. But for the rest of us that use it and rely on it on a daily basis it’s kind of an uncertain period really. 

EMMA- When was the accessibility team formed and what did it actually do? 

PAUL- So, it’s quite interesting really. In terms of other tech companies Twitter was quite late to accessibility, if I can use that phrase. Their accessibility team was only really established in 2020, so only a couple of years ago. And that was actually following a kind of backlash against a new feature that they launched, the capability to do voice tweets. And at the time there was quite a big kickback from particularly the deaf community that there was no auto-transcription of those tweets built into the product. And people were asking, well how is it possible that you’re launching a feature like this without having thought about the accessibility implications. And it became clear at that time that it’s because there wasn’t an accessibility team, and it wasn’t really kind of baked into their product road map. So, the accessibility team was kind of founded out of that only two years ago. So, it’s a real shame – that’s probably a mild way of putting it – that it’s been disbanded. 

EMMA- Who will be affected most by the sacking of the accessibility team? 

PAUL- We’re not really sure yet on the impact of what it’s going to be. But it’s unlikely that any probably existing features are going to be removed. But it does raise the question about what’s going to happen going forward in terms of the future development of any more features, about making the service more accessible; or just simply maintaining the ones that currently exist. 

EMMA- So, like if they change things and fix bugs and stuff like that they won’t be maybe considering accessibility as much as they were before? 

PAUL- Exactly. The position of a lot of major tech companies now is that accessibility is what they call kind of baked in. And it’s when they do launch new features or new products, but they’re working with accessibility in mind to see how that might be incorporated or what challenges that might raise. With Twitter not having that now there’s a big black hole there and it’s kind of a real worrying question as to what’s going to happen going forward. 

EMMA- Léonie, you’re a prolific Twitter user and you have been for many years. What made you join in the first place? 

LEONIE- Well, I was until they started sacking everybody. I started using Twitter because it just appealed to me as a way to communicate with people, particularly with people from within my own industry, within the accessibility and the red field. But as I got more and more into using it I just thought it was a great way to tune into what people with other interests and hobbies were saying. I ended up following everybody from journalists, many of the ±«Óãtv accounts for example, through to authors, musicians, for finding out more about the social aspects of having a disability and what people were doing, the hacks, the workarounds, the YouTube videos to watch, all of that kind of stuff. 

EMMA- As a fellow blind person I think one of the things that appealed to me about Twitter was that it was very, very text based at the beginning, there might have been the odd picture, but most information wasn’t delivered via picture, if you know what I mean. 

LEONIE- Yes, that certainly was a huge advantage. Just earlier this year the Twitter accessibility team made adding text descriptions to images that much more a prominent feature. So, a huge stride forward in terms of accessibility, as you can’t speak pictures, so that just makes the whole recent situation just worse unfortunately. 

EMMA- Yeah, we’re quite in the dark, aren’t we, over Elon Musk’s plans for Twitter. But what are your biggest fears? 

LEONIE- My biggest fear has just been realised: he has just removed the entire accessibility team. I can understand from a business point of view that Twitter was losing $4 million a day, so obviously you’ve got to do something about that, that’s not sustainable from a business point of view. But downsizing the workforce is one thing; the way he’s done it is another, and the areas in which he's chosen to make the cuts that’s the extraordinary bit to me. 

EMMA- And where will you go if you decide to leave Twitter. 

LEONIE- I have been using something called Mastodon. 

EMMA- Oh yeah? Is it accessible? 

LEONIE- Not as much as Twitter unfortunately. I am hoping that the recent mass migration towards it will encourage them to pull their socks up a bit and make it more accessible. It is possible to use with a screen reader, but it’s not as usable as Twitter is. Partly because the apps, as far as I’m aware, aren’t really accessible at all. But people expecting it to be live Twitter it’s a bit of a shock to the system. But there are other options, Cohost is another one that seems to be gaining a bit of ground. 

EMMA- To be honest the Twitter changes has been a hot topic for lots of our listeners as well, and we’ve received a lot of messages, so thank you for those. Carrie says, ‘Twitter is a lifeline for so many people like me with MS. It gives support, friendship and information, and I would be devastated to lose this’. And Robert Ryan says, he does understand the concerns but, ‘For me Twitter has been great when it hasn’t always been easy for me to get out and about, whether that be lockdown or shielding or just inclement weather’. And someone who didn’t give their name said, ‘Seriously considering leaving Twitter due to the changes. Letting go the accessibility team is a huge reason why’. So, I think those responses cover the spectrum of what disabled people think. Léonie was talking about Mastodon; where else are people going? Or is that really the main spot, do you think, away from Twitter I mean? 

PAUL- There’s also a couple of smaller ones, Tribal Social. If you’re of a particular political persuasion there’s also things like Parler, or Donald Trump’s Truth Social. But one thing that has made me smile in the last couple of days is that Tumblr is making a bit of a resurgence. So, 2007 internet me is very pleased about that; retreating to what’s cosy and what we know and what’s warm. It’s a bit like a warm internet hug going back to Tumblr.

EMMA- Oh, Tumblr is not cosy for me. Léonie what do you think about this Tumblr business? Would you go back to Tumblr, Léonie?

LEONIE- I’ve never really used Tumblr. But actually I have moved to another variation on that which is Micro.blog, which as the name suggests is a mini blog, where rather than posting 300, 400-word blog posts, you post your Twitteresque statements and posts. That idea of going back to some of the older tech, as Paul mentioned, I’ve been listening to you feeling exactly the same, I think it’s very nice actually in some respects going back to some of those basics. There’s a lot to be said for that because those technologies have been around a long time and it turns out they’re here to step in to fill a bridge now that’s cropped up here. So, that’s worth thinking about in the scheme of things. 

EMMA- There has been mention of the Metaverse. Could you please explain the Metaverse to my granny in a really simple couple of sentences, starting with, the Metaverse is…? Go. 

PAUL- Wow, okay. The Metaverse is something that you experience at the moment by wearing some sort of headset or glasses. And it’s essentially a virtual environment or world that you experience that isn’t really there. it’s something that you can either look at that overlays on the world around  you, or that you kind of step into via a headset or some kind of wearable contraption that you put on your head. Would your granny understand that? 

EMMA- I think I understood it. Léonie, your top accessibility tip is: it doesn’t have to be perfect, it just has to be a little bit better than yesterday. Do you think in general we’re going in the right direction? 

LEONIE- Yes, I do. Although it doesn’t always feel like that when you’re using a lot of technology and things. The reason I say with that much conviction that I think it is moving in the right direction is there’s an open slack workspace chat platform for people interested in accessibility. Seven or eight years ago when it got started there were about 20 or so people; there’s nearly 10,000 people there now. 

EMMA- Wow. 

LEONIE- So, just that sheer change in this is now a mainstream thing, lots of people are doing it, interested in it, promoting it. 

EMMA- Léonie Watson and Paul Carter, thank you so much for explaining all of this to little old me. I really appreciate it. 

Before I go, Access All had heard word that the new Minister for Disabled People is [drum roll] MP Tom Pursglove. Tom was one of two MPs Nikki narrowed it down to on last week’s episode. He’s the MP for Corby, a mere 34 years old, and Tom previously served as Minister of State for Immigration. He also has a personal invite from Nikki and myself to take tea at Access All House. 

You lucky things, you can subscribe to Access All on ±«Óãtv Sounds. Please do that. Please tell your friends to do that. Tell them to rate us and review us, because I know you’ve done it already. Thank you very much, it really helps us. And Nikki is back next week. I cannot wait to see her, hear all about her holidays. Looking forward to it. See you then. Bye. 

Ellie, obviously I said we were finished, what did you and Nikita used to talk about? Because he said you’d talk about anything but dancing; what kinds of things? 

ELLIE- Oh, we used to talk about everything. We went skydiving yesterday. 

EMMA- No way!

ELLIE- Yeah. Because again it’s my birthday, he wanted to get something special for me. And it was like ‘El, let’s go skydiving’. I was like, ‘Okay, let’s do it after I get back from America’. And then the night before he was like, ‘I’ve booked us in’. I was like, ‘Oh my gosh, Nikita, I can’t even process it’. But literally it was amazing. It was so fun. I loved the freefall at the start. I thought jumping out the plane would be quite scary but that was my favourite. 

EMMA- You don’t jump though. They just literally push you from behind. 

ELLIE- Yeah.

EMMA- When I did it they just sort of push you out the plane. 

ELLIE- I know, it was amazing. I probably wouldn’t do it again, but it’s definitely ticked off my bucket list now and I’ve done it. 

EMMA- Was it a tandem jump? 

ELLIE- Oh yeah, it was a tandem jump. Oh gosh, I could not have done that on my own. 

[Trailer]

CLIP- ‘I could feel our house shaking.’ ‘That was one of the scariest battles.’ ‘I’m traumatised.’ ‘I’m completely destroyed.’ 

VICTORIA- Hello, I’m Victoria Derbyshire, one of the hosts of Ukrainecast. We actually put out the first episode of Ukrainecast on the very first day of the war when Russia invaded Ukraine. 

MALE- This is a European country and it’s at war. It’s extraordinary. 

VICTORIA- So much has happened since then, and all the way through we’ve been trying to tell people’s stories, what’s really happening on the ground in Ukraine. 

CLIP- My elder daughter was lying on the ground. She had been dead.

VICTORIA- And we’ll be here for you, making sense of it all for as long as we need to be.

CLIP- ‘People were being snatched and disappearing.’ ‘People took to the streets even after the Ukrainian forces had gone.’ 

VICTORIA- Ukrainecast is made by the same ±«Óãtv News team that makes this podcast. 

CLIP- This is it, this is the war of the direst evil against all of humanity. 

VICTORIA- Listen to Ukrainecast on Mondays, Wednesdays and Fridays. Just search for Ukrainecast on ±«Óãtv Sounds.


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