Main content

Being disabled in the third lockdown

As Lockdown returns so does our Isolation Diaries podcast

Kate Monaghan has Ehlers-Danlos syndrome and endometriosis, whilst her wife Holly is the recipient of a kidney transplant and has been shielding since the start of the pandemic.

Last spring Kate documented the personal reality of managing lockdown with the added complexity of being disabled, having a high risk family member and an energetic three-year-old daughter.

This winter lockdown threatens to be even harder and as Kate's lockdown household grows we share the highs, lows and everything in-between!

Produced by Amy Elizabeth.

Subscribe to the podcast on ±«Óćtv Sounds or say "Ask the ±«Óćtv for Ouch" to your smart speaker.

If you want to message Kate or ask her a question, email amy.elizabeth@bbc.co.uk

Release date:

Available now

30 minutes

Transcript

This is the full transcript of Ouch ā€“ the cabin fever Isolation Diaries podcast as broadcast on 22ndĢżJanuary 2021 and presented by Kate Monaghan.ĢżĢż

kate - Well hello, and welcome back to Isolation Diaries. It has been a little while hasnā€™t it? For those of you who are new to Isolation Diaries Iā€™m Kate Monaghan, and this is basically my online diary. Back in March when the world stood still for the first time I carried my recording equipment around in my pocket to record my thoughts while I was shielding with my family. We were shielding because my wife, Holly, is the recipient of a kidney transplant, and so sheā€™s on medication that basically stops her immune system. So sheā€™s in the extremely clinically vulnerable category, which meant that we had to shield and follow the rules very, very strictly, and it wasnā€™t easy

Ģż

So, if youā€™re a new listener, welcome along, itā€™s great to have you here, and if you stayed with me during series one, well you probably now know me better than some of my very best friends. The one thing that I always promise with this podcast is that I will be super honest, as a disabled wife and mum with EDS, which isĢżEhlers-Danlos syndrome, a kind of chronic pain, joints thing. Iā€™ve got endometriosis, Iā€™ve got fibroids, Iā€™ve got all sorts of stuff going on, including joyful mental health issues as well. So doing that all in lockdown is far from glamorous, as Iā€™m sure you can imagine, but I always keep it real. In fact sometimes it gets a bit too real, which Iā€™m not going to apologise for because Iā€™m warning you about that now

Ģż

Last time I spoke to you in the summer my family consisted of my wife, Holly, our daughter, Scout, and our four cats, Milo, Tiger, Felix and Ralphie. In fact you can hear Milo now having a lovely time on my lap, but that has now all changed.

Ģż

[music]

Ģż

KATE - Hey baby.

Ģż

HOLLY - Okay.

Ģż

KATE - Hi.

Ģż

HOLLY - Hi. What are you doing?

Ģż

KATE - Well, itā€™s back.

Ģż

HOLLY - Whatā€™s back?

Ģż

KATE - The podcast.

Ģż

HOLLY - Yay! [laughter]

Ģż

kate - Is that a real yay?

Ģż

HOLLY - Yeah. Lockdownā€¦ Are we calling it lockdown two or lockdown three?

Ģż

KATE - I think itā€™s lockdown three now because 2.0 was in November, although it was brief and not that difficult.

Ģż

HOLLY - Yeah, I donā€™t feel like that was a really veryā€¦ Yeah, not much of a thing. But no, since we last had the podcast weā€™veā€¦ Weā€™ve doubled the amountā€¦ Did you justā€¦?

Ģż

kate - I just farted, sorry. [laughter]

Ģż

HOLLY - Thatā€™s really nice.

Ģż

KATIE - Classic.

Ģż

HOLLY - It is classic. Weā€™ve doubled the amount of children we have. Weā€™ve doubled the amount of people in this house. What else has changed?

Ģż

KATE - Scoutā€™s been at school.

Ģż

HOLLY - Yeah, Scout started school, did a term and is now not at school. Andā€¦

Ģż

KATE - Yeah. So, like, we need to explain all these things. Okay, so weā€™ve doubled our children, so weā€™ve adopted a beautiful daughter.

Ģż

HOLLY - Yeah, so weā€™ve got two little girls now. Our youngest isā€¦ Sheā€™s 20 months.

Ģż

KATE - Who we often refer to as Little G.

Ģż

HOLLY - Yeah. Is she 21 months?

Ģż

KATE - No, sheā€™s 20 months. Sheā€™s two in April.

Ģż

HOLLY - No, I thinkā€¦

Ģż

KATE - Yeah, so February, Marchā€¦ Yeah, soā€¦

Ģż

HOLLY - Okay, whatever. Sheā€™s 21 months.

Ģż

KATE - Sheā€™s two in April.

Ģż

HOLLY - Yeah.

Ģż

KATE - And sheā€™s beautiful and gorgeous and weā€™re all absolutely besotted with her I think, Scout included. Finally.

Ģż

HOLLY - Finally. Thatā€™s another story.

Ģż

KATE - Yeah. And your brother and his girlfriend moved in.

Ģż

HOLLY - Yeah, so they moved in, as due to lockdown they had to rent out their flat and theyā€™re also trying to buy a house, so it made sense for them to come and live in the top floor of our house.

Ģż

KATE - Well, theyā€™ve been living here since October last year.

Ģż

HOLLY - Yeah.

Ģż

KATE - Quite a while actually.

Ģż

HOLLY - Yeah, and itā€™s good. Theyā€™re great cooks and the kids adore them.

Ģż

KATE - Yeah, theyā€™re a bit younger than us. The kids think theyā€™re really fun.

Ģż

HOLLY - And cool.

Ģż

KATE - Yeah, theyā€™re, like, early 20s. Mid 20s actually, letā€™s be fair.

Ģż

HOLLY - I think Willā€™s almost 27, Kate.

Ģż

KATE - Is he?

Ģż

HOLLY - Yes. [laughs]

Ģż

KATE - Wow, okay. Early 20s, thatā€™s early 20s to me.

Ģż

HOLLY - Yeah. God, yeah youā€™re right actually.

Ģż

KATE - Okay, mid 20s. So Will and Louise now live with us until their new house is bought, which is going to be a few months.

Ģż

HOLLY - So thereā€™s six of us here now.

Ģż

KATE - Yeah.

Ģż

HOLLY - And sometimes itā€™s crowded, sometimes itā€™s not. Oh, we lost a cat, because you know we had four cats, that was really sad, a few months ago.

Ģż

KATE - Oh, yeah.

Ģż

HOLLY - We were in Cornwall where my dad lives, seeing him, and we got a call saying that one of our cats was dead in the garden because heā€™d been run over and that was awful.

Ģż

KATE - Yeah, heā€™d managed to get himself to the garden. Ralphie.

Ģż

HOLLY - Little Ralf. He wasnā€™t the brightest spark was he, butā€¦

Ģż

KATE - No, butā€¦

Ģż

HOLLY - He gave, like, proper hugs. He put his paws round your neck.

Ģż

KATE - Yeah, round your neck. When you picked him up heā€™d put his paws round your neck.

Ģż

HOLLY - Like a baby.

Ģż

kate - And then heā€™d just hold on and youā€™d, like, cuddle him.

Ģż

HOLLY - Oh, I miss him so much. But weā€™ve got the other three.

Ģż

KATE - Weā€™ve still got three cats. So yeah, weā€™ve added three humans.

Ģż

HOLLY - Minus a cat.

Ģż

kate - Weā€™ve taken away one cat. Equalsā€¦

Ģż

HOLLY - Lockdown 3.0. [laughter]

Ģż

KATE - Yeah. Wow.

Ģż

HOLLY - So here we are.

Ģż

KATE - So here we are. So babes, how is this lockdown feeling for you?

Ģż

HOLLY - Erā€¦ pretty crap actually.

Ģż

KATE - Yeah, so better or worse than lockdown 1.0?

Ģż

HOLLY - Worse. I mean, itā€™s dark at, like, three oā€™clock and it gets light at about nine oā€™clock in the morning. I thinkā€¦ I mean, I can deal with all that, the hardest thing has been, so Scout started school in September, absolutely loved it. She didnā€™t really get on with preschool much, I think she was quite bored.

Ģż

KATE - No, she was really happy to go back to preschool. She did a week and then she was like, ahā€¦

Ģż

HOLLY - Yeah, Iā€™m done now.

Ģż

KATE - Iā€™m done. I donā€™t want to go back.

Ģż

HOLLY - Whereas school has challenged her.

Ģż

KATE - Well, we ended up not sending her for the last month of preschool, so we were like, oh, is she going to go to school? Howā€™s it going to go? And she went and she loved it.

Ģż

holly - From day one she has been just such a fan of everything to do with school hasnā€™t she?

Ģż

KATE - Yeah.

Ģż

HOLLY - She gets to do, like, dance and yoga and rugby and sheā€™s got all her little friends and itā€™s a really, really nice little local school. And we walk in the morning. We had a really nice routine of walking all together to get her and everything. And so we had a lovely term, all prepared for her to go back, andā€¦

Ģż

KATE - Well, then Christmas happened and then the new variant happened.

Ģż

HOLLY - Well actually we were probably not going to send her for the first two weeks anyway.

Ģż

KATE - Well we were thinking about not sending her for the first two weeks and we were, like, oh actually maybe we will send her. Then before school started we were sort of having debates of like, oh should we send her on Monday? Luckily on that Mondayā€¦

Ģż

HOLLY - And then she had an inset day, so we were, like, oh, you know, letā€™s wait and see what the government do. They didnā€™t shut schools so weā€™d literally, like, that afternoon at about, I donā€™t know, two oā€™clock, made the decision that she was going to go back to school the next day. So cases in Yorkshire were low compared to London.

Ģż

HOLLY - Yeah.

Ģż

KATE - And itā€™s good for our mental health.

Ģż

HOLLY - And her mental health. She was desperate to go back. We had a lovely two week Christmas holiday.

Ģż

KATE - So we decided, we were, like, okay, sheā€™s going to go back to school. ā€œRight, so Scout, youā€™re going to go back to school, itā€™s great. Youā€™re going to go back tomorrow.ā€ And then literally five minutes after telling her our phones pinged and it was, like, press conference happening at six oā€™clock this evening. And then we were like, ā€œScout, you might be going back to school.ā€ And then all the news started leaking and we said, ā€œOh, weā€™re not going to be able to tell you until youā€™ve been in bed and youā€™ve gone to sleep. We wonā€™t be able to tell you till the morning,ā€ because obviously the press conference that evening wasnā€™t till eight oā€™clock. God, it was so unsettling wasnā€™t it?

Ģż

HOLLY - Yeah, that was two and a half weeks ago I think?

Ģż

KATE - Two weeks ago. Two weeks today.

Ģż

HOLLY - And so Scoutā€™s school jumped into action and started, you know, said, ā€œRight, weā€™re going to do home schooling and weā€™re going to do this online register,ā€ so in the morning all her classmates got on Zoom.

Ģż

kate - Well no, thatā€™s not what happened. Itā€™s not.

Ģż

HOLLY - Why donā€™t you just skip? Just skip the boring bits.

Ģż

KATE - Because itā€™s more interesting.

Ģż

HOLLY - Nothing happened.

Ģż

KATE - Well, the next day it was all just like, everyone was scrambling all over the place. The school did their best but there was no online stuff, we were just, like, ā€œOkay, youā€™re not going to school, itā€™s fine, youā€™re just going to stay home with Mummy and Mumma,ā€ and she was, like, okay with it and then came home schooling, which the teacher started sending work at the end of that week I think?

Ģż

HOLLY - Yeah. Oh, I think it was the day after. It was, like, midweek. But, you know, it was fun for five minutes.

Ģż

KATE - Yeah, sheā€™s really not into home schooling and sheā€™s finding the register quite tough at the moment isnā€™t she? Sheā€™s getting a bitā€¦

Ģż

HOLLY - Yeah, I think itā€™sā€¦ You know, sheā€™s got 30 kids in her class, so itā€™s 30 four and five year olds, obviously some of them are in school so she can see them. Everyoneā€™s scrambling to say hello andā€¦

Ģż

KATE - You canā€™t really hear anything.

Ģż

HOLLY - No, itā€™s actually reallyā€¦ A really stressful start to the morning. And they do emphasise that theyā€™re like, you know, you must be dressed.

Ģż

KATE - Yeah. You have to be in appropriate clothes at 9:20 to register.

Ģż

HOLLY - You know, which fair enough, but it just puts extra pressure on. And so weā€™re not loving that. But weā€™re justā€¦ weā€™re just trying to get by every day. Weā€™re not teachers.

Ģż

[music]

Ģż

KATE - Whoā€™s come downstairs? Oh itā€™s okay, itā€™s Louise.

Ģż

HOLLY - Oh.

Ģż

KATE - Weā€™re always worried that it might be Scout trying to escape from her bedroom.

Ģż

HOLLY - Yeah.

Ģż

KATE - Because itā€™s night time, weā€™ve just put her to bed and sheā€™s forever trying to get out and get into our bed.

Ģż

HOLLY - Yeah, successfully, 99% of the time.

Ģż

KATE - Yeah. What else is going on? My grandmaā€™s dying, so thatā€™s not fun, and in a pandemic that is even worse. Sheā€™s very poorly and we got told on Saturday that she has been moved to palliative care. Sheā€™s very old so, you know, sheā€™s had a good life, butā€¦ Itā€™s not COVID, it is kind of just old age really, but yeah, I donā€™t think sheā€™s going to last much longer and we were quite close, me and my grandma, and I havenā€™t been able to see her. I remember saying to you, do you remember, last year I got upset one day near the beginning of the pandemic, maybe like a few weeks in, I said, ā€œIā€™m worried Iā€™ll never see my grandma again.ā€

Ģż

HOLLY - Yeah, yeah.

Ģż

KATE - And what did you say?

Ģż

HOLLY - ā€œYes, you willā€? I donā€™t know.

Ģż

KATE - Yeah, you were like, ā€œDonā€™t be ridiculous, of course you will.ā€

Ģż

HOLLY - Oh, your grandma is the most amazing woman, sheā€™s, like, so frail and so old sheā€™s, like, 96.

Ģż

KATe - 96, yes.

Ģż

HOLLY - And sheā€™s had so many, like, scrapes with death in the past ten years.

Ģż

KATE - Near death experiences. Yeah, because one of my friends, right, Iā€™ll tell you this story, one of my friends, my best friend in fact, she went into labourā€¦

Ģż

HOLLY - I thought I was your best friend. [laughter]

Ģż

kate - My best friend who Iā€™m not married to.

Ģż

KATE - She went into labour one night and she phoned me and said, ā€œCan you take me to the hospital?ā€ So I was like, ā€œYeah, yeah, yeah, Iā€™ll take you to the hospital,ā€ but at this point my grandma was really poorly and I was saying to her, ā€œI donā€™t think sheā€™s going to make it through the night,ā€ and as a joke I sort of said, ā€œYou should name your baby after her, because sheā€™s going to die.ā€ And lo and behold she did. [laughs] She was like, ā€œActually, I really like that name.ā€ So yeah, and she always jokes with me, sheā€™s always like, ā€œSo, howā€™s that grandma who I named my child after who was supposed to die?ā€ And I was like, ā€œYeah, still alive.ā€

Ģż

HOLLY - Have you told her?

Ģż

KATE - Yeah, I have. Yeah, of course I have. But yeah, thatā€™s how bounce back-able my grandma is.

Ģż

HOLLY - Yeah, sheā€™s amazing.

Ģż

KATE - But I donā€™t think there is any bouncing back from this one unfortunately.

Ģż

HOLLY - You never know.

Ģż

KATE - Well, the doctors have made it fairly clear. So yeah. Anyway, Iā€™d really like to see her, I want to be with my parents and itā€™s really awful.

Ģż

HOLLY - Oh course, yeah. It feels like a time where families should be pulling together and being together and supporting each other, yet itā€™s impossible.

Ģż

KATE - Also, I have finally got surgery scheduled which Iā€™m very excited about. As long time listeners may know Iā€™ve been waiting for a hysterectomy for a long time, over a year now, because Iā€™ve got a really large fibroid in my womb, and my womb has served me very ill throughout my life. There is nothingā€¦ No good has come from this womb has it?

Ģż

HOLLY - No.

Ģż

KATE - Literally thereā€™s been no point to it. Itā€™s borne no children, it has just caused pain and anguish. Iā€™ve had really bad endometriosis, this is probably an endometriosis-y thing in my womb, theyā€™re not quite sure, fibroid or adenomyosis or something. The surgeon wants to just get it out so heā€™s scheduled surgeryā€¦ you know, as soon as ops came back online he was, like, ā€œLetā€™s get you in and done.ā€ So in two weeks, hopefully, it will be done. So Iā€™m very excited about that, to finally get it out. So, weā€™ll be navigating surgery in a pandemic.

Ģż

HOLLY - Yeah.

Ģż

KATE - How do you feel about that, Hol?

Ģż

HOLLY - Not great.

Ģż

KATE - Why?

Ģż

HOLLY - Well, I think itā€™s a risk having it withā€¦ Oh, hi Felix. With COVID around, but you really need the surgery so weā€™ve been waiting for it for a long time, so itā€™s got to happen and weā€™ll make it work somehow. We always do.

Ģż

kate - Itā€™ll be really weird because you and I have been together through quite a lot of surgeries havenā€™t we? And we have certain coping mechanisms and most of those coping mechanisms involve each other.

Ģż

HOLLY - Yeah, yeah, like, I mean weā€™d been together about nine months and you had major surgery at UCL andā€¦

Ģż

KATE - I had my ovary removed. Part of my bowel shaven off.

Ģż

HOLLY - Oh, thatā€™s not good. All this stuff, but yeah, we were together all through that really.

Ģż

KATE - Yeah. Oh, I do have happy memories though of us lying in hospital watching ā€˜Greyā€™s Anatomyā€™.

Ģż

HOLLY - Yeah.

Ģż

KATE - And you wonā€™t be able to do that with me now.

Ģż

HOLLY - No, I know.

Ģż

KATE - Because thatā€™s how we spent our evenings.

Ģż

HOLLY - I could Zoom in?

Ģż

KATE - Yeah.

Ģż

HOLLY - I could do a watching party.

Ģż

KATE - But you used to get on my bed with me which the nurses always hated, so any time you heard them coming youā€™d, like, jump onto the seat and then youā€™d jump back onto the bed.

Ģż

HOLLY - Thatā€™s quite a few years ago though when we were both really skinny. [laughs]

Ģż

kate - I donā€™t think we could do it.

Ģż

HOLLY - I donā€™t think weā€™d fit on a single bed.

Ģż

KATE - Not after lockdown weight.

Ģż

HOLLY - No. King size barely takes us.

Ģż

KATE - But we got fat and happy, itā€™s fine, when we got together. Oh dear.

Ģż

HOLLY - Not for much longer, me being a runner.

Ģż

KATE - Yeah. Ah, thatā€™s the other thing, I can barely recognise you but youā€™ve started running.

Ģż

holly - I have. Itā€™s like my happy thing now. I love it. I did Couch to 5K.

Ģż

kate - So tell me, when did this start and why did it start?

Ģż

HOLLY - Oh, it started in November. Why did it? Well, I think I was kind of craving my own space and my own thing, and to get out of the house.

Ģż

kate - And, you know, obviously with lockdown, you know, thereā€™s literally nothing else to do.

Ģż

holly - Yeah, so I started doing Couch to 5K. Thanks Jo Whiley, you got me through it.

Ģż

KATE - How did Jo Whiley get you through it?

Ģż

HOLLY - Because she gives you, like, motivation.

Ģż

KATE - Is she the voice of it?

Ģż

HOLLY - Sheā€™s the voice.

Ģż

KATE - Oh, I see.

Ģż

HOLLY - And so sheā€™s like, ā€œCome on, you can do it!ā€ I was like, ā€œYes Jo, I can do it.ā€ So I started that and I couldnā€™t even run for 90 seconds and Iā€™ve just finished an hour and I can run for half an hour now.

Ģż

KATE - That is amazing. Because if anyone knows Holly in real life theyā€™ll know she is so far from athletic, it isā€¦

Ģż

HOLLY - Oh, God. I was the kid at school whoā€™d be, like, faking multiple periods every week to get out of swimming, to get out of PE, to get out of anything. Just go missing last thing, you know, just before the lesson. Oh, I just hated it.

Ģż

KATE - Yeah, I mean, Iā€™ve never known you run or go to the gym or doā€¦

Ģż

HOLLY - No. I like swimming.

Ģż

KATE - The most you would do is go swimming with me.

Ģż

holly - But thatā€™s more of a nice thing. Mindful.

Ģż

KATE - We go up and down the pool and then we go into the jacuzzi and thatā€™s it.

Ģż

HOLLY - And we just kind of do little breast strokes, you know, thatā€™s more of aā€¦

Ģż

KATE - Yeah. Lesbian breast stroke. Sorry!

Ģż

HOLLY - What? Why are you evenā€¦?

Ģż

KATE - Iā€™m sorry. [laughs]

Ģż

HOLLY - Why is it even funny?

Ģż

KATE - Sorry.

Ģż

HOLLY - Why?

Ģż

KATE - Why? Iā€™ll have to explain it, Holly.

Ģż

HOLLY - Okay.

Ģż

KATE - Anyway, yeah. So you were not a runner.

Ģż

HOLLY - No. But this isā€¦

Ģż

KATE - See, Iā€™m looking at my wife thinkingā€¦ Like for Christmas I bought you running gear.

Ģż

HOLLY - Yeah, I know.

Ģż

KATE - It was so weird.

Ģż

HOLLY - Well, Iā€™d been talking about running for ages and I kept making excuses and I kept saying, ā€œOh I donā€™t have the kit, I donā€™t have theā€¦ā€

Ģż

KATE - We tried Couch to 5K before and last time you told me you stopped because you had renal bone disease, which meant that your knees were too sore.

Ģż

HOLLY - Well, I do haveā€¦ Thatā€™s true, but this timeā€¦ Anyway, this neighbour came round.

Ģż

KATE - Whatā€™s renal bone disease, for anyone who doesnā€™t know?

Ģż

HOLLY - Just crappy, achy bones.

Ģż

KATE - Isnā€™t it like sort of weak bones because of your renal disease, your kidney disease?

Ģż

HOLLY - Yeah, I guess so. Itā€™s probably something to do with phosphate or something. I donā€™t really know.

Ģż

KATE - I donā€™t know.

Ģż

HOLLY - Anyway, yeah, a neighbour kind of came over with all this, like, brand new gym kit. She was like, ā€œIā€™m not going to use this so do you want it?ā€ And thatā€™s it.

Ģż

KATE - Was she trying to tell you something?

Ģż

HOLLY - Yeah. And that was it, I was like, Iā€™ve no more excuses now, and yeah, itā€™s been really good for me, really good, lots ofā€¦ Whatā€™s that hormone that you get when youā€™reā€¦?

Ģż

KATE - Serotonin?

Ģż

HOLLY - I donā€™t know, but you get a really good hormone boost. Iā€™m really hungry actually.

Ģż

KATE - You are?

Ģż

HOLLY - Yeah, Iā€™m fading a bit. I think we ought to get some dinner.

Ģż

KATE - Well, letā€™s see what our personal chefs downstairs have cooked us this evening.

Ģż

HOLLY - I can smell good things you see.

Ģż

KATE - I know, itā€™s really good. Itā€™s like we bath the kids and put them to bed and then we go downstairs and, like, thereā€™s a meal cooked for us.

Ģż

HOLLY - And itā€™s a really goodā€¦

Ģż

KATE - Itā€™s generally pretty good.

Ģż

[music]

Ģż

HOLLY - Scout, where are we at the moment?

Ģż

SCOUT - At McDonaldā€™s.

Ģż

kate - Yeah. And what are we sitting in?

Ģż

SCOUT - Our car. And Iā€™m eating a Happy Meal.

Ģż

KATE - You are. This is our weekly treat with just Scout, and our little one, she naps while we do this.

Ģż

HOLLY - When Will and Louise are at home.

Ģż

KATE - We go out, we get a drive thru and we collect the Click and Collect shopping at the supermarket, and itā€™s good isnā€™t it? Nice. And Scout, she sits onā€¦ You drive donā€™t you? You drive the car?

Ģż

SCOUT - I do.

Ģż

KATE - And who orders the food?ĢżĢżĢżĢżĢżĢżĢżĢżĢżĢżĢż

Ģż

SCOUT - I do.

Ģż

KATE - And who pays for the food?

Ģż

SCOUT - I do.

Ģż

kate - Yeah.

Ģż

holly - Thatā€™s right.

Ģż

kate - Thatā€™s right. And we were just talking about when this crazy lockdown is over what things weā€™re going to look forward to doing. Scout, youā€™re keen to get back to school arenā€™t you?

Ģż

SCOUT - Yeah.

Ģż

KATE - What are you excited to do? Whatā€™s your favourite thing to do when we can do whatever we want?

Ģż

HOLLY - Do you know what I miss?

Ģż

KATE - Hold on, Iā€™m asking Scout.

Ģż

SCOUT - Swimming.

Ģż

KATE - Swimming. We love going swimming donā€™t we?

Ģż

HOLLY - We do. We love it.

Ģż

SCOUT - And we like going to the pool but itā€™s shut on the virus.

Ģż

KATE - It is shut to the virus. Where else do you miss going? Do you miss going to your friendsā€™ houses for play dates?

Ģż

scout - I miss going to my friendsā€™ houses at play dates and I go to school.

Ģż

HOLLY - Yeah, you go to school.

Ģż

SCOUT - But itā€™s closed.

Ģż

HOLLY - It is closed.

Ģż

[music]

Ģż

KATE - So weā€™ve just got up, and Little Gā€™s with us. Hello. Yeah, you want to go downstairs. But we just had some news didnā€™t we?

Ģż

HOLLY - Yeah.

Ģż

KATE - We got a text from my dad just saying that Grandma passed away last night peacefully.

Ģż

HOLLY - Yeah, very peacefully.

Ģż

KATE - Andā€¦ Were you going to say something?

Ģż

HOLLY - I was going to say she was in her homeā€¦ in a home that she was living in wasnā€™t she? In a nice room andā€¦

Ģż

KATE - Yeah.

Ģż

HOLLY - And your dad was with her.

Ģż

KATE - Yeah. Because they, I guess you kind of know, you start to know donā€™t you when you work in those places that these are the signs to look out for? So they called him, he went back.

Ģż

HOLLY - And he was with her. And she was the grand old age of 96.

Ģż

KATE - Yeah.

Ģż

HOLLY - But it doesnā€™t make it any less sad, that she was very old and you didnā€™t get to go and say goodbye

Ģż

KATE - No.

Ģż

HOLLY - Which isā€¦

Ģż

KATE - The hardest thing.

Ģż

HOLLY - The hardest thing, yeah.

Ģż

KATE - Can you see the snow, Gracie? Can you see the snow?

Ģż

HOLLY - Itā€™s snowing.

Ģż

KATE - Yeah, itā€™s snowing. It brings some light relief this morning to us all which will be good.

Ģż

[music]

Ģż

KATE - Oh, so it has been a really bad day. Yeah. Really bad day. I spoke to her about three oā€™clock yesterday and she was like, nodding as if she understood what I was saying. We were Facetiming, my dad was with her in the care home. I told her how much I loved her and, you know, how much weā€™d miss her and what an amazing grandma sheā€™d been. And she managed to speak to all her grandchildren. Dad Facetimed everybody so that everybody could say what they wanted to say, so that was really very nice, and then she had a very peaceful passing, according to my dad.

Ģż

So, yeah. That was bad. And then I got a phone call about two hours ago from my hospital and I mean, itā€™s not a surprise, but theyā€™ve cancelled my surgery which, yeah, Iā€™m not surprised about but also I canā€™t help being a bit gutted about becauseā€¦ You canā€™t look forward to surgery, but I was looking forward to it because I was looking forward to the problem being gone and not having to be on hormone injections and not having to have the pain all the time and not having to deal with like the bladder problems and the stomach problems that come with it all and everything.

Ģż

So yeah, itā€™s just been a really bad day and I just feel a bit crappy and yeah. Oh hey, Milo. Have you come to check up on me? So itā€™s early. Iā€™ve decided to take a sleeping tablet because Iā€™m exhausted and in loads of pain and know that I probably wonā€™t sleep, so Iā€™ve just taken a sleeping tablet and Iā€™m going to go to sleep, basically because I just donā€™t want to, like, face it all. So Iā€™ll have a good sleep and pick myself up and try again tomorrow and be a bit brighter about things hopefully. It just sucks because normally, you know, Iā€™d go and be with Mum and Dad right now but we canā€™t. I would have been with Grandma at some point in the last few days. I would have seen her more, well I would have seen her, full stop, in person over the last year and I barely have. Yeah, the only time Iā€™ve actually seen her was on Facetime a few times when the care homeā€™s been able to arrange it for me. So yeah, it just sucks. This whole thing really sucks.

Ģż

[music]

Ģż

KATE - I donā€™t know how well youā€™ll be able to hear this because itā€™s snowing and weā€™re wearing masks because weā€™re outside, andā€¦

Ģż

HOLLY - Weā€™re going to getā€¦ Weā€™re going for a wintery walk.

Ģż

KATE - Yeah, just a short one to the hot chocolate shop. So we were just having a conversation about funerals, and what weā€™re going to do about Grandmaā€™s. So obviously we both want to go. If everything was normal, do you think Scout would go?

Ģż

HOLLY - Oh, I donā€™t know. I think that would beā€¦ I donā€™t know, it totally depends on the tone and whether her cousins are going? You know what I mean?

Ģż

KATE - Yeah. But I donā€™t think any of them, thereā€™s space for any of them now. It depends on the numbers.

Ģż

HOLLY - How many people can she have?

Ģż

KATE - Right, well the people at the crematorium said that the maximum amount is 30 but itā€™s not as simple as 30 because all the chairs have to be two meters apart from each other. And they have to be set out in, like, a family group, for example. So if you donā€™t live with people then you canā€™t sit with them. So itā€™s likeā€¦ [loud car] Oh, big car.

Ģż

HOLLY - He needs to take it easy on the snow.

Ģż

KATE - I know. He was going way too fast. Heā€™s going to get into trouble. Thereā€™s, like, four chairs at the front and thereā€™s, like, two rows of two chairs and then three chairs. But if someoneā€™s a one then they canā€™t separate the chairs.

Ģż

HOLLY - Oh, my God.

Ģż

KATE - Because thereā€™s not enough space for, like, one chair and then two meters and then another chair and then two meters for 30 people.

Ģż

HOLLY - Wow. Thatā€™s so complicated.

Ģż

KATE - Yeah, yeah. So alreadyā€¦ So, that limitsā€¦

Ģż

HOLLY - Oh my God. As if you want to be, like, thinking about this along with everything else.

Ģż

KATE - I know. My poor dad and aunty. So yeah, I just donā€™tā€¦ Itā€™s not as simple as you can have 30 people there, itā€™s like ten times more complicated. Weā€™re literally never going to get to the hot chocolate shop because weā€™re walking so slowly.

Ģż

HOLLY - Well, we have to. I donā€™t want to slip and end up in A&E, I mean, you know. Itā€™s happened before.

Ģż

KATE - It has. Slipped over, broken both your ankles.

Ģż

HOLLY - Yeah, exactly. And it wasnā€™t even snowing then.

Ģż

KATE - No. Well, letā€™s just think about ourselves. Like, Iā€™m making a big assumption here but Iā€™m assuming that youā€™re not going to come because you are shielding.

Ģż

HOLLY - No, I donā€™t think I can risk it. I think yeah, no COVID is too rife at the moment for me to go anywhere, let alone being in an enclosed space, which is really crap, because, you know, I loved your grandma to bits and itā€™s really sad that I canā€™t be there.

Ģż

KATE - Yeah. But then the question is should I go?

Ģż

HOLLY - Wellā€¦

Ģż

KATE - Because obviously I want to.

Ģż

HOLLY - I know. Iā€™m not going to lie, it makes me a bit nervous, thinking of you going and then coming back into the house having been around all those people andā€¦

Ģż

KATE - Yeah.

Ģż

HOLLY - You know, a lot of your family are key workers and so theyā€™re still working.

Ģż

KATE - Yeah, thatā€™s true.

Ģż

HOLLY - But obviously if you want to go then Iā€™ll support that and weā€™ll just have to take the risk and deal with it I guess.

Ģż

KATE - I know. Itā€™s just so hard, like what is the right and wrong thing to do? Woah!

Ģż

HOLLY - Oh, are you okay?

Ģż

KATE - Yeah. That was close.

Ģż

HOLLY - I know. It feels like the snowā€™s getting worse as we walk.

Ģż

KATE - It is, Iā€™m sure it is. Oh, I hate this. I hate it all. I hate that I had to say goodbye on Facetime and not in person. I hate that I canā€™t be there for my mum and dad. I hate that we canā€™t just go this weekend and just, like, beā€¦

Ģż

HOLLY - To support them.

Ģż

KATE - Like, just be there and help them with all the crap that you have to deal with. I just hate it all. Weā€™re just stuck at home sitting with nothing to do and itā€™s just crappy. Ergh!

Ģż

[music]

Ģż

KATE - So yeah, thereā€™s a lot to think about before you hear from me again. Weighing up a situation like this funeral feels, well, kind of mad really. But on a more positive note, end of next week is my birthday. Hurray! Goodness knows how weā€™re going to celebrate, but itā€™ll be my first as a family of four. So Iā€™ll keep you updated on any creative ideas we have. If you have any ideas about the best way to celebrate a birthday in lockdown please let me know, because I always love hearing from you. Maybe youā€™ve got some ideas on how to celebrate a lockdown birthday. If you do, email my producer, Amy, at amy.elizabeth@bbc.co.uk.

Ģż

And is there anything that particularly, as someone with a disability, youā€™re struggling with? The chances are if thereā€™s an emotion youā€™ve felt Iā€™ve probably felt it too, so let me know and maybe we can have a rant together. Ouch also have lots of other wonderful podcasts to help keep you going, so may I just recommend subscribing to this on Sounds so you donā€™t miss a single episode. Also feel free to follow us on Twitter at ±«Óćtv Ouch. So, Holly, Scout, Baby G and a handful of cats, extended family members, and I, will see you all next week.

Featured in...

Podcast

Get the latest episodes of the Access All podcast the moment a new episode goes live!

Podcast