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Fi Glover introduces a 21 year old with Ehlers-Danlos Syndrome, a life-shortening condition; she and her mother share her determination to make the most of the time that she has.

The Listening Project is a Radio 4 initiative that offers a snapshot of contemporary Britain in which people across the UK volunteer to have a conversation with someone close to them about a subject they've never discussed intimately before. The conversations are being gathered across the UK by teams of producers from local and national radio stations who facilitate each encounter. Every conversation - they're not 鲍鱼tv interviews, and that's an important difference - lasts up to an hour, and is then edited to extract the key moment of connection between the participants. Most of the unedited conversations are being archived by the British Library and used to build up a collection of voices capturing a unique portrait of the UK in the second decade of the millennium. You can upload your own conversations or just learn more about The Listening Project by visiting bbc.co.uk/listeningproject

Producer: Marya Burgess.